Tag: Disability Story

My name is Crystal and I am living with systemic lupus. In November 2009 I was a happy and healthy bride looking forward to an active and promising life. On my honeymoon in the spring of 2010, I started showing symptoms that no one had an answer for: at first

  “Pride is a feeling of deep pleasure or satisfaction derived from one’s own achievements, the achievements of those with whom one is closely associated, or from qualities or possessions that are widely admired.” Pride celebrations have long been a topic of conversation for many groups – with the Disability Pride

My son was born 10 years ago after a long awaited pregnancy. We knew at his birth that something was wrong. Within minutes, he was whisked away to the NICU. After many diagnostic tests and procedures, he was diagnosed with a rare genetic neurodevelopmental syndrome called Prader Willi Syndrome (PWS).

My name is Ethan and although I do not have a disability I live with someone who does. My wife Andrea has epilepsy. Andrea was diagnosed with epilepsy when she was nineteen years old. To begin with, epilepsy prevented her from working and interfered with her lifestyle. She was having